This is a paperback ARC.

A sweet, strange story about a girl who has a rare skin condition that prevents her from ever venturing out into the sun -- even a little sunlight could burn her badly. Lila isn't an unhappy girl, however; her family loves her, and she has two mysterious friends who appear in the night to play with her when she is alone. This might appeal to people who like Francesca Lia Block.

This one's about to be mailed to another Bookcrosser!

I haven't read it yet